Bio The COVID-19 Longhauler Advocacy Project (C19LAP) is a grassroots, patient-led, all volunteer 501(c)(3) nonprofit organization. We began in June of 2020 as a single facebook group which has grown to over 60 chapters covering each U.S. state and territory and community chapters such as Pediatrics & Pregnancy, Teens, BIPOC, LGBTQIA+, Caregivers, Labor Force Union, Research, Bereavement, and more. Our mission at COVID-19 Longhauler Advocacy Project is to advance the understanding of Long COVID and its associated conditions, and expedite solutions and assistance to Longhaulers and their families through advocacy, education, research, and support. Two of our major focuses are education and awareness about Long COVID. We believe that this will help promote and emphasize the need for significant investment into research and our healthcare systems, and increase the knowledge needed to improve and implement other actions, such as clinician and public education, that will in turn, improve patient outcomes and quality of life.

Name
Karyn Bishof

Email
admin@longhauler-advocacy.org

Skills and Expertise
Patient Advocacy Organizing Strategic Planning Communications Community Convening & Outreach Patient and Caregiver Support Clinician & Research Education Public Education Project management Gap Analysis research Community Support long COVID Infection Associated Chronic Conditions Long COVID Associated Conditions